Where the women can sign up for the research project and either read about or watch a video about the project.
Prior to initiating the platform's design, we held several meetings with professor Stig Bojesen, professer and doctor at Herlev/Gentofte who was also responsible for the project.
During these sessions, we gained valuable insights into the research underpinning the new screening method and identified the specific challenge we needed to address when developing the platform.
Our task was to design the onboarding and signup flow, along with outlining the data exchange procedure between participants and research employees.
Initially, Stig, had pitched a fully digital signup process, allowing participants to signup to the research directly through the onboarding page.
The final singup flow turned out not to be fully digital mainly due to the Danish Scientific Ethics Committee (NCE) declaration that participants are ethically entitled to receive a face-to-face explanation about the project when they meet up for their bi-anual mammography screening.
Being a collaborative project between the Danish Cancer Society and Gentofte/Herlev Hospital, meant that we were dependent on text and medical knowledge about the process provided by Stig, who was responsible for the communication between NCE and us. The technicalities and requirements for the process were subject to ongoing negotiation between NCE and Stig e.g. how and when the women would be invited to the study. This meant that the Danish Cancer Society began drafting the platform text much later in the process. Consequently, certain areas of the platform were not developed until later stages and the first usertests were performed without any text. Development of the participation and the backend system was also delayed due to uncertainties about the research process.
For inspiration, I analyzed the onboarding pages of comparable studies conducted in the US, such as "The wisdom study" and "My PeBs. I also examined bloddoner.dk and organdoner.dk, danish websites.
Some key insights
The websites all had strong call to action buttons that was repeated several times as users scrolled through the site, providing them with repeated opportunities to engage as they obtained more information.
The websites seemed to be structured around the questions "What", "Why" and "How".
They used imagery depicting cheerful people evoking a sense of community and a positive outlook in a difficult situation.
To gather insights into potential users I read a qualitative study on Danish women's attitude towards personalized breast cancer screening, conducted by The Danish Cancer Society (2020), focusing on topics like "perception of health" and "barrier for participating in the study.
Some key insights
Health is seen as a balance between mental and physical health. It is about being healthy (not in a fanatic way) i.e. being able to enjoy life and eating what they like.
It is common for the women to talk to their friends and colleagues about health. Most women have friends/family with history of breast cancer.
It is important that the platform clearly explains "Why" and "How" a screening for mammography every fourth is enough.
At this stage I created sketches for the onboarding page to discuss with Stig, in order to understad what sort of information that needed to be on the website.
The main purpose of the page was to get visitors to sign-up for the project as well as provide them with sufficient project details, ensuring they felt confident about signing up.
I presented a Z-shaped layout with a top video for user engagement and sections supporting the questions "What is Prsonal", "Why Prsonal" and "How does it work".
Our task was to design the onboarding and signup flow, along with outlining the data exchange procedure between participants and research employees. Initially, project lead Stig pitched a fully digital signup process , allowing participants to signup to the research directly through the website.
However this was later changed as Danish Scientific Ethics Committee (NCE) stated that participants are ethically entitled to a face-to-face explanation about the project and a 24 hours consideration period from being told about the project to signup. Additional questions such as when participants could sing-up for the process and when they would be allocated to either the control or intervention group were also determined late in the design process. As a result, the text on the website remained incomplete for an extended period of time
Early wireframes and prototypes were itereated on through feedback from Stig and the Danish Cancer Society. It was important that they were on board with the design as the Danish Cancer Society were in charge of communicating the project through text for the platform.
I chose a soft color palette with green undertones, instead of blue colors that you would normally see on health related websites, aiming instead for colors you might see on pages focusing on mental health. Pink, which is normally the color associated with breast cancer was abandoned because women had expressed that pink could be seen as patronizing.
I conducted 10 think-aloud tests in 2 rounds, with 10 participants in total.
I avoided words such as tests, and ensured participants that we were not testing their technical abilities or knowledge of the subject matter, but that we needed their honest feedback to improve the design. I ensured that the test room was comfortable and inviting, aiming for a conversational vibe rather than a formal setup.
We conducted the tests on the desktop version, as participants indicated that they primarily accessed emails from e-boks on desktop devices.
We did several iterations based on observations fromt the think-aloud tests. Underneath I go through some of the most significant changes.
I tested several designs for dropdown menus, but observed that it took long for users to notice them when positioned at the top of the page. Placing the menu items beneath the header made them more visible and gave a quicker overview of the page content, while allowing users to quickly select an option without the need for extra clicks.
Several users expressed concerns that clicking the "Deltag i forskningen" button would automatically enroll them in the project. Consequently we changed the label to “Læs mere om at deltage”. Another reason for this change was the requirement from NCE to include a page between onboarding and the part where participants confirm participation. This page had to include a legal explanation of the project.
Users were interested in knowing how the process differed between the intervention and the control group. I therefor edited my first illustration so the user could see a side-by-side comparison of the data collection methods from both the intervention and control groups. Users could hover over the icons to access more information about the various data-collection methods.
To address users feedback about wanting more information of how much time they have to set aside for the project and what is expected of them, I edited the project timeline illustration.
The new timeline shows the number of days the project spans and what is expected of participants on each day as well as the difference between the intervention and control group, reusing the illustrations from the section above for consistency.
On of the biggest misunderstandings we discovered during the usability tests, was that some users thought the risk groups determined whether or not they had cancer. In reality the risk groups only provide a score indicating how high their risk is for developing cancer.
Therefore, we invested significant effort in ensuring that it was clear to users that they could expand the risk groups to learn more about them and understand their implications. We added a slight animation when users hover over the risk groups.
Scroll to view the entire onboarding page
After designing the onboarding page, we began the design on the backend system for employees and the participation page "Min side". We performed a few short usability tests on "Min Side", to see if the women could find what they needed on the page and if they could easily answer the questionnaires. Additionally we wished to understand how the women preferred to have their risk score communicated.
Underneath I go through some of the main interactions from the backend system and "Min Side".
Where the research employee can see a list of all participants.
Research employees can add new participants by clicking the button "Ny Deltager".
Reasearch employees can filter on participation data based on completion status.
The research employee assists the participant in completing the participation consent form.
Height, weight and BMI section is activated and data can now be inserted.
Research employee can assist participants in completing various task (e.g. filling out the questionnaires)
Research employee randomly assigns the participant to either the control or intervention group.
BiRads and PRS section is activated (only for the intervention group).
90 days pass: The riskscore can be released to the participant.
Partcipants are asigned to the intervention or the control group and is directed to "Min side".
Here participants can fill out the risk questionnaire touching on physical health and family history with cancer. On the days participants have to fill out the questionnaires regarding mental health they receive an email notification.
Participants can receive assistance and track their progress in the process.
90 days pass: Participants in the intervention group receives an email that directs them to Min Side, where they can view their risk score.
The project involved several stakeholders including the Danish Cancer Society, which was responsible for text on the platform and Danish Scientific Ethics Committee (NCE), which had to approve the platform's design and text. Consequently, the text on the platform had to undergo numerous iterations before it was ready to be inserted in the prototype.
Requirements for the sign up process was also unclear well into the design process. For instance was it possible for the women to register for the project before being informed about it during their mammography screening appointment? Additionally certain usability aspects on the platform had to be deprioritized in favor of specific requirements from NCE. For instance, some text had to be repeated for legal reason, which made the platform hard to skim. It was also uncertain what level of precision was required in the responses women provided in the questionnaire regarding family history and cancer. The precision of the responses would greatly influence the accuracy n of the risk score generated from the model in use. However, the women often struggled to recall exact details regarding the cancer history of their family members. As a result, the design of the questions had to accommodate this uncertainty.
One feedback I got from a developer who worked on the platform, was that it was confusing that I had used ANT components in some places, but in others I had modified the components. The developers feedback was that if we use libraries we should either use them 100% or not at all as it can be very difficult and time consuming to edit an ANT component, without loosing important functionality and consistency as well as being difficult to maintain. If the ANT components does not meet the needs for the project, it is better to just design custom components form scratch. In this case I should have familiarized myself better with ANT components to understand the limitations and possibilities of the library. Alternatively developers should have participated in product meetings to ensure that technical limitations were taken into account throughout the process.
In the end, we did not have time to conduct user testing on the employee backend system, meaning that this part of the platform might require further iterations post-pilot. The reason being that we spent too much time, testing the onboarding platform, partly because we were waiting for text from the Danish Cancer Society. In hindsight I could have pushed the testing earlier, potentially prompting the Danish Cancer society to provide text earlier. For my part I should have planned out the project better in advance considering the time allocated for testing the onboarding platform.